Learning Health System Collaboratory

The LHS Collaboratory and ELSI will have a special session on June 21, 2022.  Register in advance to learn more about ELSI-LHS. The session will be moderated by, Jody E. Platt, MPH, PhD, Assistant Professor of Learning Health Sciences.

In contrast to the laborious and expensive process of generating genetic datasets de novo, academic genetic researchers are increasingly using large and inexpensive “secondary” research datasets held by government, consortia, and industry for their work. Choosing between different kinds of data providers is about more than just convenience, however, it can also have important implications for the kind of science advanced and to which communities it will generalize. This talk will explore the factors driving researchers to select certain datasets for their work as well as their experiences sharing to, as well as using, shared data resources. As researchers wait for the new National Institutes of Health’s “Policy for Data Management and Sharing” to go into effect in January 2023, this talk will explore who ultimately carries the burden of increasing data sharing requirements

Monday, April 17, 2023

9:00 am - 3:00 pm  ET

In-person event at Palmer Commons, Great Lakes Room

100 Washtenaw Ave, Ann Arbor, MI 

Please check this website for further updates.

For more information, contact: [email protected].